Reader's experience with Tysabri/Vitamins
I have been on Tysabri for 3 months now and things are good, No active lesions seen on MRI...( Way Cool ) ! Vitamin Therapy has been such a blessing to me as well....My daily dosage is,
1. Lecithin 400mg tabs- I take 4 tabs in Am and 2 in Pm at bedtime
2. Vitamin B- Complex- 1 tab in Am My energy level has increased so much.
3. Vitamin E 100mgs- 2 tabs just because I have always taken them.
4. Cranberry Concentrate 500 mg- 2 to 3 tabs in Am to help prevent Urinary Infections by taking the pills I avoid all the sugars from the juice.
Comments
No lesions ... no big issues ... knock on wood.
BTW: Ever try pomegranate juice?
Posted by: mdmhvonpa | June 25, 2007 05:11 PM
My husband was diagnosed with MS in Dec 2005. He has been on Avonax since the beginning. Our nerologist is a huge fan of thei Tysabri, and doesn't really believe in the 4 "suppressing" drugs (Rebif, Avonax, Copaxon, Beta Seron) I am a little nervous because of the 4 people that contraced PML and died when they first brought out Tysabri. Now I am aware of the facts. Thousands took this drug and loved it. Another pile of people took Tysabri and another brug (E.G. Avonax,) and did fine, and then those unfortunate 4 took Tysabri with another drug and died.
I know it is unlikey but I am a little afraid of this drug, just as I am excited about it's good possibilities. Any words of wisdom out there?
Posted by: Stacey | July 18, 2007 02:37 PM
I have talked with several people on Tysabri who all say it has helped them. I was diagnosed in 1993 and was on Avonex for several years and switched to Rebif about 4 years ago. I am now considering switching to Tysabri also. Anyone on it care to comment on what kind of changes you have noticed since being on Tysabri?
Posted by: Betsy | August 5, 2007 02:26 PM
Hello.
I have just had my 9th infusion of Tysabri. I also had a bit of fear and worry about going on it. I had been on copaxone for 8 years and seemed to be sliding downhill so the opportunity to be on the cutting edge of MS therapy was an opportunity to trust my doctor and hpe for the best.
My second infusion left me miserable for about three days with joint/muscle pain insomnia and general flu like symptoms. I thought "Oh LOrd what am I doing to myself?" but since then my post infusion reaction has been less dramatic. I have random pain for about 5-6 hours, sometimes a headache. I believe the drug has cleared my mind from its sluggishness, given me greater stamina and generally more ambition for my life. I hpe to continue it. My sypmtoms are depression, insomnia, pain, muscle spasms, fatigue. I just recently experience some dramatic arm weakness. It lasted about 12 hours. My legs have been at their weakest during this period but seem to improve with rest. I have been diagnosed for 10 years and am 55 yrs old (female) I had syptoms in my 30's that make sense now but my diagnosis came from an MRI done to deal with disk problems in my back-and then optical neuritis. I hope this information helps others decide. Remember the circumstances around those who developed PML were very complicated; get the real facts before you waste a lot of time fearing that side affect. Love and care for all those reading this information. reaching out is important. This is a great site. Donna
Posted by: dj | August 8, 2007 08:00 PM