Who to tell?
The rule I follow when determining who to tell is asking myself, "Who needs to know?" My family and friends were first, of course. I told a close co-worker whom I trusted. That was all. Since symptoms were under control, I saw no need to tell my employer. In fact, I plan to keep this to my family and friends unless a time comes where I need to disclose it (i.e., interferes with work).
As much as we like to think we're open-minded, the truth is there is a certain stigma associated with any kind of disease. Consider this: If someone were to approach you two years before you had any MS symptoms and said they have, for example, lupus. What would your reaction be...honestly? You probably would not discriminate or judge them (hopefully:)); but, chances are when you saw that person, you would associate the disease with them. I don't want that association between me and MS.
In general, I don't want to be treated any differently. So, I don't advertise it.
As much as we like to think we're open-minded, the truth is there is a certain stigma associated with any kind of disease. Consider this: If someone were to approach you two years before you had any MS symptoms and said they have, for example, lupus. What would your reaction be...honestly? You probably would not discriminate or judge them (hopefully:)); but, chances are when you saw that person, you would associate the disease with them. I don't want that association between me and MS.
In general, I don't want to be treated any differently. So, I don't advertise it.
Comments
I try to inform everyone that I have M.S. I live in a small town, so most people are aware. If they aren't, people will ask me "what is wrong with my leg" or "did you hurt your leg?" I substitute teach, and alot of times, the kids will ask. I want to tell them I have a disease called multiple sclerosis, but I don't want to scare them with the word 'disease'. Also, I may not have time to give them an in-depth explanation because of scheduled lesson plans or many times, I might be walking down the hall. Any advice on how to answer a child?
Posted by: Jennifer | May 16, 2008 12:52 PM